It has been sometime since I posted anything on this blog
although it still seems to still get regular traffic. For the benefit of those
whom I don’t keep in touch with regularly or those that have found this site in
the hunt for information on HCL having just been diagnosed then, by way of an
update, I can happily state that two years on from treatment I am still in
remission.
Although this is, what I term ‘ the scary year’ – that being
the one where most HCL survivors seem to relapse or get diagnosed with a
secondary cancer – I sometimes find almost a whole day can pass with me not
having thought about it. Slowly, slowly, the whole thing ebbs away into the
background and ceases to become the most central thing on one’s mind.
There are two key reasons for this: One is having “A Small”.
By far one of the most distracting things anyone can introduce into their life
is a child. In my case a Daughter but I’m assuming that Son’s also work. As a
distraction from cancer and its related fallout these are ideal to have around
but being complex to create, and expensive to maintain, they are not for
everyone.
The second reason for my almost constant optimism, and one
that is far more accessible to anyone who has gone through chemotherapy, is
exercise. Regular exercise. I’ve said it before and I’ll say it again. Nothing
has helped my life after chemotherapy with regard to wellbeing and especially
mood more than exercise.
Since my treatment finished I’ve been in regular contact
with a number of cancer related charities, mainly Macmillan. I’ve reviewed
books that might be used by others going through similar situations. I’ve read
a few leaflets and documents as they go through the publishing process to offer
thoughts on how useful they might be or how, as far as I’m concerned, they
might be improved. I’m one of many, many people who do this and if you are
interested it is worth signing up as a Macmillan Voice to help out where you
can.
As part of this contact with Macmillan I, along with two
others, were interviewed for a video on physical activity and how it had helped
them in their recovery from cancer treatment. This video was filmed some time
ago as part of a much wider campaign on staying active that, for all the effort
that went into it, sadly got lost in the press under the sheer weight of the
news covering riots that struck a number
of towns and cities across the UK last summer.
Some of that campaign appears to be being re-launched and
along with it a cut of the video I was interviewed for. Macmillan’s YouTube
channel is well worth checking out and if you’re just trying to come to terms
with a diagnosis then their website and leaflets contain some excellent
information. Even if they are not always very good at advertising the fact.
One of the people I don’t keep up with regularly is Sibylla
and I hope she is one of the handful of people who still pop by and check this
out. If only to see me trying to do her proud by pulling some nifty yoga moves
in Regents Park as part of this video. Years after being introduced to it at
her fantastic retreat in Plymouth I still do it, although not as regularly as
I’d like. I came upon yoga long before I was diagnosed and yet it was the one
activity I felt I could still do even on my weakest days.
Looking very fit! You put me to shame, Richard. I need to make time in my life again for some exercise: I know those endorphins really do work.
ReplyDeleteKeep on chasing The Small, and The Scary Year will hopefully pass without any problems.
I like The Mummers shirt, by the way.