I've hit rock bottom.
Not mentally, in that respect I am still optimistic, but my immune system, for months lowered; over a week dropping; today hit zero. This afternoon my neutrophil count was 0.03%. If they're going to get to zero then that's where they are as I type. Another day has passed in my little room and this morning, under cover of a face mask, I was allowed down the corridor to another ward where I could have a shower.
Feeling particularly icky, already unkempt hair beginning to matt into greasy clusters, I was so so grateful for the feeling of hot running water pouring over me. I had been detached from my drip and my peripheral line wrapped snugly in a number of plastic aprons to stop water ingress. The combined feelings of cleanliness AND freedom were amazing; fifteen minutes of bliss well worth the logistical effort required.
Back on my bed, clean and gleaming, I was soon hooked back up to my line. Supping a cup of tea. Eating cookies.
I find myself things to do in my room but, as a feel fine, there is not a great deal to tell: The tightening in my chest seems to get worse at night, I think it is brought on by tiredness, but has not yet developed into a full on cough. In addition to my saline drip, intravenous anti-biotics, and anti-viral pills I am now also having a blood transfusion. I'm on my second unit now and there's a third to come tomorrow.
My lovely chemo lady bounced in to say hello on her way to another room, bag of yellow chemo in hand for someone requiring treatment more time consuming than my own.
Family have visited bearing the holy grail of a T-Mobile USB broadband stick, the most painful part of my stay so far has been trying to set it up. Having got them to finally take some money I was not allowed onto my blog because "it may contain porn". The solution: to go to a T-Mobile store and prove I was over 18! Many phone calls later I got the lock removed remotely but not without great effort. My advice to anyone following in my footsteps would be to set such a service up way, way before hand to avoid any unneeded stress.
Still my T-Mobile antics filled an otherwise empty afternoon and I got to speak to some new people. Which was nice. You have to enjoy the small things in here as there is not a lot else going on; I've readopted the enthusiasm of a child for all things new.
Last night we had a fire alarm which caused a lot of bustling on the wards around me. Content to stay put unless I actually saw some smoke I felt genuine excitement at being able to watch the fire engine arrive, lights flashing, in the car park six floors below.
Hospital Radio has been everything I hoped for and a joy to listen to. Even in this enlightened digital age the audio levels are all over the shop, segways are fumbled, and the music mix is so specifically chosen that it has equal irrelevance to all who listen. Meanwhile the screen emitting the noise shows a Powerpoint presentation advertising the Patientline service featuring people grinning so inanely I had to turn it round to point the other way lest I become possessed.
Sanity will be reintroduced to my little world this evening by West Wing Series 1. I do not plan to plough through the whole box in one sitting but I hope that just observing some extended, intelligent, adult conversation will pull my mind back from the happy clappy place it feels inclined to visit. My only other option is to just let go: stick two pencils up my nose; my pants on my head; and to start saying "Wibble".
You Brits have a wonderful way of saying things, perhaps because we Yanks have a tendency to butcher the English language.
ReplyDeleteAnyway, it’s was good to hear they let you out of captivity long enough to wash and stretch your legs a bit. I don’t think there is anything which makes one feel better than a good shower and some clean clothes.
I was kind of wondering, you mentioned your spleen, was it greatly enlarged? Mine puffed up a bit but not to the point of being a big pain in the belly. Since treatment a sonogram has shown it returned to normal or at least what’s normal for me.
I’m looking forward to hearing your numbers have started back up and this time minus hairy.
Doug
Hi Rich,
ReplyDeleteI have been following your progress on your especially well-written blog and am sending you warm well wishes from NJ.
How wonderful that your family came to the rescue with the internet broadband. The local hospital I was treated in for HCL, the summer 2007, had an awful internet connection. Glaciers have been formed, and subsequently melted, in less than time than it took those pages to load. I might add that hospital charged a premium for their so called internet service. Hey, I like that idea to set up a cell phone broadband internet service beforehand. I hope I remember that the next time I need to get treated for HCL, which I’m hoping is not until 2062, give or take a few years.
When I read that you liked seeing the fire engines out the window, my mind was immediately brought back to the night of July 4th during my hospital stay. I was on one of the top floors of Holy Name Hospital in Teaneck, which, as it turned out, provided me an excellent vantage point to view the fireworks being lit off at the not too distant Overpeck Park. By the way, that’s a park that’s built on top of a garbage dump that had once been a swamp. This is, after all, New Jersey.
Not sure about the pencils and pants. I may have tried clicking my heels to together a few times and repeating “I want to go home.” It didn’t work. Well, not initially anyway, but I did eventually make it home safe and sound (though with a couple of more grey hairs I’m sure).
I can’t promise you will look back on this and laugh, but you will get mad props from other people when you relate your survivor status. Or in the local parlance, “Eh, You know mudda f---uh, I’m a mudda F---n’ Leukemia suvivuh”.
Oh and although it doesn’t rise to the level of a silver lining, but in the future when you call in sick from work here or there, people won’t question it.
Lastly, you mention music. I did find it soothing to listen to music while I was in the hospital. Oh and I also remember watching a lot of nature, travel and food programs on T.V., which reminds me the talk of the town here, bigger than anything else actually, is that the cable stations have pulled HGTV and the Food Network. It is getting downright ugly. I’ll let you know how it turns out.
Vinny (aka Vincent James on Rob's board)
Hi Chaps,
ReplyDeleteI'm glad you enjoy my turn of phrase. I don't know if it's typically English but I am told it is typically me.
The reference to pants, pencils, and "wibble" will probably have been lost on most American readers unless they've had the thoroughly good fortune to watch Black Adder Goes Fourth wherein the three ingredients are applied in order to feign madness enough to require withdrawal from the front line in the first world war. A plan that ultimately fails.
My spleen was pretty big. I could feel it aching some evenings, or if I sat oddly. CT scans showed it was the same size as my liver. Not as big as they can get but certainly way beyond its normal size. I had an different aching last night below my lower left rib so I am wondering if its shrinking.
A park built on a rubbish dump built on a swamp! Really? I can only imagine the weird toxic slop that must ooze out of the ground there.
Rich
After some hunting I managed to find the relevent Wibble scene from Black Adder Goes Fourth....
ReplyDeletehttp://www.youtube.com/watch?v=Gm7bIGhTBTE&NR=1
Hola Rich!!
ReplyDeleteHe seguido leyendo tu blog :)
Espero que pronto te recuperes, estaré orando por tí y por tu salud.
Ánimo!
I feel your pain of life with a connection. I have my mobile broadband stick within arms reach.
ReplyDeleteIn fact, whenever I have to go to hospital, the first thing I think is "Blackberry, Blackberry charger, laptop & charger, PSP for games ..."
Glad you're hooked up. Enjoy the DVD's ...
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ReplyDeleteHi Bixho,
ReplyDeleteThanks for your kind words.